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My Secret Identity

The good news about keeping myself in a moderate to severe flare up of my mystery illness (see this post), is I played with Emma for quite awhile without caring it’d mean lots of pain, pre-syncope by bed time, the rest of the evening in bed, and probably a rough morning tomorrow. It’s sort of … Continue reading

Health Update / Learn Something! / Tips & Tricks for Illness Management

Why are some chronically ill patients so intense?

While the Infectious Disease doctor didn’t have any “ah-ha” moments and definitely hadn’t looked over my files ahead of time (her staff’s fault for scheduling me as a patient with an acute need, not her fault), she did order a test I haven’t had before called a Gallium Scan. Here is how things proceeded… Tuesday … Continue reading