This is just a quick hello and update. It has been 2 weeks since my sister’s birthday party. I took most of the week following the party to recover, then this past week, I had to stop taking some meds for some testing I had done. Having to be off certain medications resulted in me not getting enough sleep which always makes things worse overall. I finally can take them again which is really exciting and resulted in me sleeping 11 hours last night! Although my “mysterious illness symptoms” are pretty intense (lymph node issues and fatigue), my POTS symptoms remained at bay through most all of this. There were times when they appeared. However, other than two incidents lasting less than 20 minutes each, the POTS symptom onset was always at the very end of my day. How exciting is that? I believe the symptoms are remaining at bay despite my other issues because pretty much no matter how tired I am, I stick to the plan and do my temperature training, heart rate variability training, and meditation. I haven’t been able to fit in exercise often, but the doctor agrees it isn’t a good idea to make myself sick exercising. I was doing sort of okay with it, but then I got the cold, then we had Emma for a week, then I had my sister’s party, then I had a week with out some meds, and here I am! Hopefully I can get back at it soon. I have some stuff coming up, but none of it should knock me on my butt except Emma’s birthday party. In less than 1 week, we are throwing Emma’s 4th birthday party. In about 2 weeks, we are planning to get some family pictures taken. In 3 weeks, I head back to Dallas for a follow up at The POTS Treatment Center.
Today, I was able to dance with Miss Emma for about 10 minutes which I never could have done before. She loves putting on dance shows for me, so I made her a youtube playlist which comes up on the TV. I have shamelessly loved Britney Spears since I was 9. I swear I don’t usually like music like this; I never got into Spice Girls, Nsync, Backstreet Boys, etc., but something about her just drew me in and away from the “cool” music I got from my older brother and sister. I am trying to pass this Britney appreciation down to our unsuspecting 4 year old now that she seems to be into poppy, girly songs. I was quite excited she was digging my old school Britney songs from when I was little, and she was quite excited I could get up and dance for once. It was a win-win. She wished I could have danced longer instead of watching most of the time. I told her someday I will be able to and that I will be taking notes on her dance moves in the meantime so I’ll be ready when the day comes. Back to Britney… When I was 12, my Mom told me someday I’d be embarrassed by how obsessed with Britney I was and I told her that would never be true and I’d love her music for forever. Well Mom, looks like I was right! I may not have 50 pictures of her plastered on my bedroom wall, but I still get ridiculously excited when her songs come on and still can (and did) listen to her music for hours straight and I even awfully karaoked Womanizer one college night out. But hey, rest easy knowing at least I didn’t turn out to be the maker of a “Leave Britney Alone” type video!
In conclusion, life isn’t perfect and I still have to rest almost all day everyday… but life is definitely much easier than it was and I get little windows of time to do fun stuff like dance to Britney Spears with Emma!