I’m doing slightly better than last time we talked.
In terms of my eye, I’m doing very well! I’ve never had a cut or surgery heal this well. It seems to still hurt some where the actual biopsy was performed (the gland) but the incision feels fine. Everyone keeps asking if my stitches are itchy (today is day 20 of having them in) but they are not in the least. I don’t know if it because I heal more slowly than most, the site of the incision, my constant icing, or that I’ve kept the area moisturized with ointment and scar salve. Who knows why? All we care is that it is healing well, right? The stitching string came quite a ways out of the incision on my left side and kept getting in my eye. I thought maybe I should knot it before I clipped it, but it seemed pretty “common sense” to others to just clip it, leaving 1/3 an inch at least hanging out. So, that is what I did and the stitch thread slid right down into the incision overnight. Whoops! Oh well. They are coming out tomorrow and I definitely couldn’t leave it so long and risk it scratching my eye.
My eyes are getting more symmetrical. If I am looking down at you, there is a chance you wouldn’t even notice a difference! When I look straight, you can still tell, but it is much better than it was.
In terms of fatigue, POTS flare up, and mystery disease flare up, I’ve made some progress but am still struggling. I’m still wearing my compression stockings most days and spending a lot of time at rest, even for me. I got some fluids last Thursday which was quite helpful. I try and get up as often as I can to get that blood moving. When I have a surge of energy, I can do small tasks (load dishwasher) but if I stand too long or do anything requiring bending over and over (picking items up off of floor), I’m in trouble. It’s pretty ridiculous a biopsy can cause such havoc! Although my armpit lymph nodes still hurt, I can no longer see them when I lift my arms. This is progress. My throat hurts but not as much early in the day, especially if I get enough sleep. I’ve been sleeping anywhere from 9 to 12 hours most nights. Today I had to wake up early for a phone calls, so I only slept 7.5 hours and I can really tell a difference. My medicine makes it difficult to nap.
Coming up: I get my stitches out tomorrow. I hope to have my eyebrows groomed finally. Although I think the extra reinforcement on the incision would be helpful, I think it would weird out the lady if I went there with stitches in my eyes and asked her to thread them. We have our Emma for three weekends in a row. This past weekend I was able to do a bit more with her than last time which made us both very happy. I taught her how to do my and my grandpa’s favorite past time of building houses out of playing cards. When we started, I told her it is tricky and the houses fall very easily, so we have to remember to not get mad over it. My Papa always laughed when our half-hour-in-the-making masterpiece would get knocked over by me bumping the table or laughing and blowing the cards down. I am teaching Emma to do the same. This upcoming weekend, we have her for 2 days before and after the weekend. My sister’s wedding reception is this Saturday. I am planning on really loading up the medication so I can sit up most of the time and enjoy myself.